Thank you to Julie at http://www.netnet.net/mums/ for sharing this with HBOT.org !
We did HBOT with our two children with Autism last year in May 2000 and have recently returned from San Diego after doing 27 more treatments with them. I would like to tell you how wonderful this has been for the kids.
My son (10) is just really a different child. He has not only acquired more language but is able to show me just how much he knows by verbalizing and now asking questions. He is so much more related. I cannot begin to tell of all the benefits because they daily improve.
My daughter (3) is also improving daily, with her it is difficult because my son's starting point had to be much higher than hers being that he is so much older so I'd like to say that if she stopped progressing somewhere around 1 year of age, she is now more like a 2 1/2 year old as far as her demeanor and like a 1 1/2 year old with language emergence. She says her abc's, counts, says her name, and is starting to sing and dance to music. She gets excited to see us come home when we are away, and is able to engage in play with her 4 siblings. She is understanding the word no, to the degree that we can stop temper tantrums by saying this to her, like our other children. We have now done almost 70 treatments with the kids. The second round showed improvements much more quickly then the first set. Isabel would play peek-a-boo through the porthole with the technician and really was agreeable to going in the chamber now.
We drove into Tijuana one day while in California and my son said "Goodbye California, hello Mexico" showing that he totally understood crossing a border which is a very complex concept, one I thought he may never understand. He loves to memorize the cable guide, and while we were away we brought the current guide with us. We crossed over from February into March and on Feb. 28th when I put Eric to bed he began to cry softly, when I asked him what's wrong (by the way we have totally reached a point where we expect him to answer after years of asking anyway, only to hear more screaming...) and he said, "It's March" and I said "Yes, tomorrow is March 1st" and he said "The cable guide!" and really began to cry, so I said "We can go tomorrow and get a new cable guide from the cable company ok?"
A little background that is probably not necessary for mothers of children with Autism, this sort of answer of "don't worry we'll take care of it" is not usually understood and will create more of a tantrum. But my son simply said "Ok, a new one tomorrow." I asked "are you happy?" he said "yes". This was the FIRST time in 10 years of his life that he ever asked for anything or that we took a trip to get him something he really wanted. We were so thrilled. This type of communication is now a regular occurence at our house and has so lowered his frustration level that he is happier as our we.
My son did not even speak until he was 6 1/2 and that was nonsensical words and songs or tunes. He was somewhat echolalic as well but his language was very limited. He is now full of questions "where's daddy?" "where's Mommy?" he says "I'm hungry" "it's my turn", where are we going?" he asked what time we'll be back home. he got the concept of days, months, years and seasons. He initiates boyish play with his older brother and wrestles with his younger sisters. He tickles them!
As I stated in my last email to you we have tried every treatment available, pretty much, nothing has changed the course of their lives like HBOT. Again I believe it's through prayer that God has allowed it to work for them, but it has been great. We have a ways to go because we are doing 250 treatments total, but cannot wait to see what every next set of treatments will bring. We noticed improvements in them steadily after the first round for up to almost the year after we went. My son who needed instruction for everything he did, now gets up in the morning, makes his bed, gets dressed, goes downstairs, makes his own breakfast, and his own sandwiches for lunch. We say "kids let's go" and he gets his socks, shoes and coat on by himself, grabs the diaper bag or whatever we're taking and heads out to the car with the rest of them. The other day I went way out on the limb and said "Eric, can you go downstairs and get me a cup of juice?" I waited, wondering if he would ever return, and moments later he appeared so proud with my drink in his hand, I ran down and asked my husband if he directed or helped him, he said he didn't even know what he was doing and watched him get the cup of juice and leave and knew it must have been for me because Eric will only drink water. How's that!!!
If I say Halleluia, it's not enough, if I cry to the Lord with thanksgiving, it is not enough, if I try to explain how it is changing not only my children's lives but the whole families as well, I could not do it adequately. So much time effort and money has gone into my kids, especially my son, which was actually the easy part, the disappointment at failed therapies at times seemed to much to bear, I know mothers can relate to this feeling. This hopelessness. But I am more vocal now then the first time because, I wanted to be sure. I did not want to have some moms spend a fortune and a great portion of their heart on another failed treatment. I was cautious, but excited the first time around. I am anxiously awaiting a future now that I once only dreaded. The next thing I'd like to say is that I am trying to arrange less expensive treatments for moms who can't afford the high cost of HBOT. The chambers without the hoods like the one we have gone to in San Diego are the easiest and so my sister spoke to a mobile unit that is like the one we go to. I live near Galena Illinois. My thoughts are, because this type of chamber can hold either 4 or maybe his new one is 6 I can't remember right now, I figured moms could split the costs of treatments. There are many resort homes for rent in Galena, which have up to 8 bedrooms. My sister and I are going to arrange for the chamber to come here in July sometime and would arrange everything for moms and kids to stay in a house, where the chamber would be housed for 20 days, get the treatments and split the costs of everything. that way, not only could some do it sooner, but more frequently as well. Galena is 15 miles from Dubuque Iowa, to give moms an idea of where we're at. We have one family already joining and would very much like to help out others as well. Thank you for networking through your website. Sincerely, Michelle Divino Email: divino@aeroinc.net
Individual free standing Hyperbaric Oxygen centers focused on treating non-FDA approved conditions can chart only their own patients' progress. And because of HIPPA's privacy rules, they are not allowed to share that data with others. This blog's mission is to aggregate patients' experiences across allcenters so that we can learn more from each other.
If you or someone you care for has used Hyperbaric Oxygen Therapy, please post your experience here - good and bad. Just choose the Condition (e.g., Autism) and click on Comments.
Please be sure to include as much data as you can, such as: months/years of illness; other medications/therapies; the HBOT protocol (i.e., depth, duration, frequency, and total number of dives); age; and gender. Feel free to include additional information, including personal homepage url's.
If you operate an HBOT clinic, please place a link on your website to www.hbot.org to become a "Participating Clinic".
1 comments:
Thank you to Julie at http://www.netnet.net/mums/ for sharing this with HBOT.org !
We did HBOT with our two children with Autism last year in May 2000 and have recently returned from San Diego after doing 27 more treatments with them. I would like to tell you how wonderful this has been for the kids.
My son (10) is just really a different child. He has not only acquired more language but is able to show me just how much he knows by verbalizing and now asking questions. He is so much more related. I cannot begin to tell of all the benefits because they daily improve.
My daughter (3) is also improving daily, with her it is difficult because my son's starting point had to be much higher than hers being that he is so much older so I'd like to say that if she stopped progressing somewhere around 1 year of age, she is now more like a 2 1/2 year old as far as her demeanor and like a 1 1/2 year old with language emergence. She says her abc's, counts, says her name, and is starting to sing and dance to music. She gets excited to see us come home when we are away, and is able to engage in play with her 4 siblings. She is understanding the word no, to the degree that we can stop temper tantrums by saying this to her, like our other children. We have now done almost 70 treatments with the kids. The second round showed improvements much more quickly then the first set. Isabel would play peek-a-boo through the porthole with the technician and really was agreeable to going in the chamber now.
We drove into Tijuana one day while in California and my son said "Goodbye California, hello Mexico" showing that he totally understood crossing a border which is a very complex concept, one I thought he may never understand. He loves to memorize the cable guide, and while we were away we brought the current guide with us. We crossed over from February into March and on Feb. 28th when I put Eric to bed he began to cry softly, when I asked him what's wrong (by the way we have totally reached a point where we expect him to answer after years of asking anyway, only to hear more screaming...) and he said, "It's March" and I said "Yes, tomorrow is March 1st" and he said "The cable guide!" and really began to cry, so I said "We can go tomorrow and get a new cable guide from the cable company ok?"
A little background that is probably not necessary for mothers of children with Autism, this sort of answer of "don't worry we'll take care of it" is not usually understood and will create more of a tantrum. But my son simply said "Ok, a new one tomorrow." I asked "are you happy?" he said "yes". This was the FIRST time in 10 years of his life that he ever asked for anything or that we took a trip to get him something he really wanted. We were so thrilled. This type of communication is now a regular occurence at our house and has so lowered his frustration level that he is happier as our we.
My son did not even speak until he was 6 1/2 and that was nonsensical words and songs or tunes. He was somewhat echolalic as well but his language was very limited. He is now full of questions "where's daddy?" "where's Mommy?" he says "I'm hungry" "it's my turn", where are we going?" he asked what time we'll be back home. he got the concept of days, months, years and seasons. He initiates boyish play with his older brother and wrestles with his younger sisters. He tickles them!
As I stated in my last email to you we have tried every treatment available, pretty much, nothing has changed the course of their lives like HBOT. Again I believe it's through prayer that God has allowed it to work for them, but it has been great. We have a ways to go because we are doing 250 treatments total, but cannot wait to see what every next set of treatments will bring. We noticed improvements in them steadily after the first round for up to almost the year after we went. My son who needed instruction for everything he did, now gets up in the morning, makes his bed, gets dressed, goes downstairs, makes his own breakfast, and his own sandwiches for lunch. We say "kids let's go" and he gets his socks, shoes and coat on by himself, grabs the diaper bag or whatever we're taking and heads out to the car with the rest of them. The other day I went way out on the limb and said "Eric, can you go downstairs and get me a cup of juice?" I waited, wondering if he would ever return, and moments later he appeared so proud with my drink in his hand, I ran down and asked my husband if he directed or helped him, he said he didn't even know what he was doing and watched him get the cup of juice and leave and knew it must have been for me because Eric will only drink water. How's that!!!
If I say Halleluia, it's not enough, if I cry to the Lord with thanksgiving, it is not enough, if I try to explain how it is changing not only my children's lives but the whole families as well, I could not do it adequately. So much time effort and money has gone into my kids, especially my son, which was actually the easy part, the disappointment at failed therapies at times seemed to much to bear, I know mothers can relate to this feeling. This hopelessness. But I am more vocal now then the first time because, I wanted to be sure. I did not want to have some moms spend a fortune and a great portion of their heart on another failed treatment. I was cautious, but excited the first time around. I am anxiously awaiting a future now that I once only dreaded. The next thing I'd like to say is that I am trying to arrange less expensive treatments for moms who can't afford the high cost of HBOT. The chambers without the hoods like the one we have gone to in San Diego are the easiest and so my sister spoke to a mobile unit that is like the one we go to. I live near Galena Illinois. My thoughts are, because this type of chamber can hold either 4 or maybe his new one is 6 I can't remember right now, I figured moms could split the costs of treatments. There are many resort homes for rent in Galena, which have up to 8 bedrooms. My sister and I are going to arrange for the chamber to come here in July sometime and would arrange everything for moms and kids to stay in a house, where the chamber would be housed for 20 days, get the treatments and split the costs of everything. that way, not only could some do it sooner, but more frequently as well. Galena is 15 miles from Dubuque Iowa, to give moms an idea of where we're at. We have one family already joining and would very much like to help out others as well.
Thank you for networking through your website. Sincerely,
Michelle Divino Email: divino@aeroinc.net
Post a Comment